Research Fellow < Back Laila Khawaja Research Fellow Long Term Conditions Dr. Laila Khawaja holds a PhD in Social Sciences from the University of Southampton and is an experienced qualitative researcher with a strong background in public health, well-being, and social engagement. She has worked extensively on projects that explore the intersection of mental health, agency, and lifestyle behaviors, particularly among young people. Laila was involved in a National Institute for Health and Care Research (NIHR) project that focused on empowering young individuals to enhance their sense of agency and well-being. This work aimed to positively influence their mental health, dietary choices, and physical activity habits through participatory engagement strategies. Currently, Laila is contributing to the Applied Research Collaboration (ARC) Wessex Long-Term Conditions theme, where she is actively engaged in two key projects: the SCALE project, which examines enablers and barriers of using a long term conditions-scale tool and a study on Social Prescribing for Link Workers , which investigates how healthcare professionals can better connect individuals to community-based resources to improve well-being and health outcomes. Her research interests include health inequalities, patient and public involvement in healthcare, and the role of social interventions in managing long-term conditions. Previous Next

Koren Luddington - Social Worker Autism and Neurodivergence Team - Portsmouth City Council < Back How I found my way S A L T to social worker Koren Luddington - Social Worker Autism and Neurodivergence Team - Portsmouth City Council Becoming a Social Worker was a slightly unexpected career path for me. After qualifying with a degree in Speech and Language Therapy at university, I fully intended on having a life-long career as a Speech and Language Therapist. During my training, I took a real interest in Learning Disability and Autism and got my initial post-qualification experience in this area. Being young and responsibility free, after a couple of years of working, I spontaneously decided to leave the country and explore the world for a year. Unfortunately, in this time the UK went into recession and when I returned home, there were limited opportunities arising in the NHS. Koren Luddington is a Social worker in Portsmouth At this point, the novel pilot scheme 'Step Up to Social Work' was brought to my attention. At first, I was only paying the idea lip service, as Social Work didn't really appeal to me - albeit, I knew very little about it. However, my skills and qualifications did tally with the requirements of this employment-based route into Social Work, which would also secure me a Masters degree upon completion. As I progressed through the stages of the application process, I began to find the subject varied and interesting. Through the 18 months of on-the-job training and studying, I felt more and more passionately about Social Work ideology and that this was in fact the most suitable career choice for me. I worked for 10 years in Children's Services, giving me an excellent foundation to build and hone my Social Work skills. When I saw a job advertised specialising in autism, I felt like this would be a great opportunity to return to this area of interest as well as improving my knowledge and experience of working in Adult Services. Since my initial experience of working in this area, there has been enormous progression in the understanding and approach towards Autism as a cognitive variance within the wider context of neurodivergence. I have enjoyed refreshing and updating my understanding of this shift in thinking and find it fascinating that there continues to be a tussle between whether autism should be considered via a social model or medical model framework. Listening to the lived experiences of the neuro-divergent people that I am working with, really got me thinking about many facets and themes that recurringly have impacted on these young people's lives. For example, is a diagnosis beneficial? If so, why is it needed and what support is inaccessible for those without a diagnosis? For what reason are autistic people 6 times more likely to experience mental health crisis than the general population?How well do universal services understand and accommodate the neuro-divergent needs of individuals? I found these kinds of questions sparking my curiosity and I was keen to explore whether there may be some responses to these questions. So, when the opportunity was presented to link with Portsmouth University as a visiting researcher, I was interested to find out more. Never having associated myself with 'academia', I was unsure whether my skills and knowledge would meet the necessary requirements for the role. It seemed like a completely different world from my day-to-day working experience; a world that I had perceived as being elusive and exclusive. My concerns were alleviated as I was matched with a mentor from the University, who was empathic and reassuring of my self-doubts. She made me feel as though all questions were valid and she was able to provide explanations that felt personalised and relevant to my field of work. Practically, my mentor has helped me to get set up on the University computer system, showed me how to access the library journals, search facilities and introduced me to new referencing software (which was not a 'thing' when I was last studying!) Crucially, my mentor has helped me to structure and narrow down my thought processes to identify a focus and objective for my research ideas. She has encouraged me to begin to critically analyse relevant topics and to identify and categorise themes in research. Undertaking training in realist evaluation has taught me the theoretical and structural basis that I needed to be able to consider the functionality of neurodivergent support services, within the importance of contextual systems and environments. It's inspiring to feel that researching the intricacies of service implementation can help provide much needed information; going some way to begin answering those initial stirring questions. My aim is to continue refining my ideas and learning from the wealth of research available in this area. If this could lead to working on a research project that would demonstrate an evidence base for useful and valuable support services for the neurodivergent community, then this would be hugely worthwhile progress towards improved opportunities and outcomes for autistic and neurodivergent people. Previous Next

18fd758f-b147-4294-acb1-07c88dc1baa9 PUNDIT – Predicting hospital Usage Numbers via a DIgital Twin Principal Investigator: Dr Carlos Lamas-Fernandez , Associate Professor in Business Analytics/ Management Science in Southampton Business School / Faculty of Social Sciences, University of Southampton. Team : Professor Christine Currie , School of Mathematics, Faculty of Social Sciences, University of Southampton. Dr Dan Burns , Innovation Centre, Electronics & Computer Science, University of Southampton. Dr Chris Duckworth , Innovation Centre, Electronics & Computer Science, University of Southampton. Professor Michael Boniface , I nnovation Centre, Electronics & Computer Science, University of Southampton. Professor Peter Griffiths , School of Health Sciences, University of Southampton. Dr Mark Wright , University Hospital Southampton NHS Foundation Trust. Starts: 1 April, 2024 Ends : 30 September 2024 Summary Hospitals in the UK are in crisis with high levels of occupancy. The percentage of occupancy in England during July-September was 88%, and in UHS it reached 92.2% . These levels exceed the safety threshold for hospital occupancy, which sits at around 85%. Together with difficulties to ensure a smooth patient flow across the hospital, this results in adverse effects for patients: elongated hospital stays, increasing the backlog of elective procedures, increasing delays in ambulance handovers and increased mortality. In practice, hospitals try and control high occupancy levels by certain interventions, such as dedicated discharge teams, re-scheduling or cancelling elective procedures or repurposing hospital wards. These measures, however, are reactive, i.e. when the occupancy is already reaching unsafe levels, rather than proactive, that is, when anticipating a high occupancy in the near future. Further, it is not clear whether occupancy levels have an effect on treatment and discharge times, but from frontline clinicians at UHS, there is the hypothesis that higher occupancy could make them longer (as clinicians are busier prioritising the sick over the well patients who could go home), compounding the occupancy issues. Higher occupancy also decreases likelihood of patients being in the optimal location. A related research project (PROCED) has shown early evidence that frequent ward/team changes increase delays in patient discharge. The aim of this project is to investigate the feasibility and build the foundations of a simulation model that can predict accurately future, short-term, hospital bed occupancy to inform interventions. The project will have a special focus on investigating the feasibility of a model to be tailored to use in practice as a “Digital Twin” (DT), which can anticipate hospital occupancy under different scenarios, some of which can reflect proposed interventions.

bc679d13-74ba-4311-9808-713cccad3190 ADOPTED PROJECT: DIGNIFIE Gender-seNsitive evaluatIon oF a prIson alternativE DIGNIFIE: Gender-seNsitive evaluatIon oF a prIson alternativE - (intervention is known as Hope Street) Chief Investigator: Dr Emma Plugge – University of Southampton Project Team Members: Ms Donna Gipson – Empowering People: Inspiring Change (EP:IC) , Ms Paula Harriott – Prison Reform Trust and EP:IC , Dr Kathy Kendall – University of Southampton, Professor Julie Parkes – University of Southampton, Dr Sara Morgan – University of Southampton Professor James Raftery – University of Southampton, Dr Lucy Wainwright Revolving Doors and EP:IC , Dr Donna Arrondelle - University of Southampton, Ms Jess Boxall - University of Southampton, Ms Natalie Austin - University of Southampton, Ms Naomi Gadian - University of Southampton Project Partner: Empowering People: Inspiring Change (EP:IC) Background: This evaluation seeks to determine whether women’s health and wellbeing, social and criminal justice outcomes are improved when they are placed in a community based residential facility (Hope Street) rather than being imprisoned. The Ministry of Justice’s 2018 Female Offender Strategy sets out plans to improve outcomes for women in the community and custody. It aspires to ensure that fewer women are imprisoned and recommends the move to community management of women in contact with the criminal justice system (CJS), including residential women’s centres with places for women to bring their children. It is in this context that Hope Street, the community alternative to imprisonment, has been developed in Southampton. Women in contact with the CJS are some of the most disadvantaged people in society. One third of them will have been in care as children, two thirds live with ongoing domestic abuse and most will have experienced poverty. They have lower basic skills attainment than the general population, are more likely to be unemployed and to be in insecure housing. Their health is considerably poorer than that of women in the community; for example, the standardised mortality ratio for suicide is 20 times higher in imprisoned women than in the general population. This mixed methods study comprises qualitative research, a prospective cohort study and health economic evaluation. It started in 2021 and will be completed in 2027.

DEM-COMM programme Building Capacity in Dementia Research DEM-COMM has been a successful capacity-building scheme for post-doctoral researchers working in applied dementia research. The scheme launched on October 1st, 2022, with funding from the National Institute for Health and Care Research and the Alzheimer’s Society, and will run until March 31st, 2026. The aim of DEM-COMMhas been to prepare a future cohort of researchers for the role of Chief Investigator in applied dementia research. This is an important and specialised role that carries with it the expectation that the lives of people living with (or at risk of) dementia will improve because of research. The scheme supported the development of more than 70 early to mid-career researchers working in one of the 15 Applied Research Collaborations (ARCs) across England. Read the full report Supporting the future generation of Chief Investigators in Applied Dementia Research Independent report on Mapping Dementia Research Capacity - Mapping career development opportunities in applied dementia research Dementia Festival 2025 report DEM-COMM is led by Professor Ruth Bartlett with ARC Wessex as the host and coordinating centre. In 2026 we celebrated the end of the DEM-COMM programme at an event in Southampton - below are just some of the videos and images from that day Southampton Test MP Satvir Kaur explains how important the work of the Dementia Fellows has been and how personal it is to her. Lisa Hammond from the Alzheimer's Society who part funded the Dem-Comm fellowships praises their impact on the lives of people with dementia and their carers and families. Watch the DEMCOMM showreel created to celebrate all the hard work and achievements of the NIHR Dementia Fellows DEM-COMM Research Fellows Dementia Post Doctoral Awards NIHR ARC East of England NIHR ARC East of England is using the funding to support post-doctoral career development awards combined with co-funding from our university partners (Cambridge, Hertfordshire, East Anglia, and Essex) to help promising researchers develop their skills and establish their own research projects, programmes and networks. DEM-COMM research fellows: 1. Dr Tamara Backhouse (UEA) - Optimising personal care assistance for people with advanced dementia 2. Dr Smruti Bulsari (Essex) – Researching in the area of dementia strategies. 3. Dr Julieta Camino (UEA) - Project TBC 4. Dr Megan Davies (UEA) How prehabilitation/rehabilitation can be implemented as a person-centred activity for people living in care homes, including those with dementia. 5. Dr Anna Dreyer - (Cambridge) – Social determinants in cognitive impairment and dementia 6. Dr Greg Windle - (Hertfordshire) - Investigating dementia-friendly community care in the East of England Read more NIHR ARC East Midlands DEM-COMM research fellows: 1. Dr Neil Chadborn - (Nottingham) – Access to technology and needs of people from diverse ethnic and socio-economic backgrounds. 2. Dr Esther Loseto-Gerritzen - (Nottingham) – Exploring the needs of people with young onset dementia in terms of care and technology. 3. Dr Orii McDermott - (Nottingham) – Addressing unmet needs of people living with young onset dementia. Read more NIHR ARC Greater Manchester DEM-COMM research fellows: 1. Dr Emma Elliott (Manchester): Deconditioning in hospitalised patients with dementia. This involves a systematic review to examine evidence of physical activity interventions for hospitalised patients with dementia. The protocol is registered on PROSPERO here. 2. Dr Sarah Fox - (Manchester) - Everyday aesthetics and the intersection of arts and health: Everyday aesthetics and the intersection of arts and health: Involves the use of a participatory approach to develop, deliver and evaluate a tailored, multi-arts social intervention with people with dementia living at home. Read more 3. Dr Jaheeda Gangannagaripalli - (Manchester) - Keep On Keep Up (KOKU) Digital technologies for falls preventions for people with dementia: The digital exercise programme is being modified for people with dementia. This fellowship will build on this to develop an intervention modification and feasibility RCT. Read more 4. Dr Sarah Smith (Manchester): Assessing the effects of physical activity interventions on the maintenance of cognitive function in midlife to reduce the risk of cognitive decline. The results of this systematic review will be explored with Public and Community Involvement and Engagement (PCIE) representatives and relevant stakeholders. Assessment of the need for a feasibility study will then follow. The protocol can be found on PROSPERO here. NIHR ARC Kent, Surrey and Sussex DEM-COMM research fellows: 1. Dr Alessandro Bosco - (Brighton and Sussex) – Project TBC 2. Dr Georgia Bell - (Brighton and Sussex) - Loneliness and dementia 3. Dr Barbora Silarova - (Kent) - Supporting wellbeing, quality of life and access to services for those with dementia living alone or in hard-to-reach areas and their unpaid carers 4. Dr Rasa Mikelyte - (Kent) - Integration of services for seamless dementia care Sarah Polack - (Brighton and Sussex) - Supporting well-being for people with dementia in deprived coastal communities/rural populations Read more NIHR ARC North East and North Cumbria The NIHR Applied Research Collaboration (ARC) North East and North Cumbria (NENC) new dementia-focussed post-doctoral fellowships focus on: Care and support in socially disadvantaged communities. Care for dementia and multiple long-term conditions. Social care to maintain independence and dignity. The role of technology in dementia care will cut across the work programme. DEM-COMM Research Fellows: 1. Dr James Faraday - (Newcastle) - Mealtime care for people living with dementia in care homes. 2. Dr Steven Lyons (Newcastle) Investigating how music provides opportunities for residents in care homes to live healthy lives, build relationships and maintain independence and dignity. 3. Dr Marie Poole - (Newcastle) - Two core areas: 1. the role of new Integrated Care Systems (ICS) in the provision of dementia care for people from socially disadvantaged backgrounds; Dr Connor Richardson - (Newcastle) - An investigation into the effects of anti-inflammatory medication have on risk of in life dementia and pathology in a population representative cohort age 65 years and over using the CFAS population 4. 2. The role of sporting clubs as emerging providers of dementia support to engage with people from socially disadvantaged communities. 5. Dr Tamlyn Watermeyer - (Northumbria University) - Involving people with Learning Disabilities in dementia research & care through technological solutions. NIHR ARC North Thames DEM-COMM Research Fellows: Alex Tsui - (UCL) - Acute care of people living with dementia Esther Hui - (UCL) - Risk factors for dementia prevention 1. Dr Kumud Kantilal (UCL) Project TBC NIHR ARC Northwest London The ARC researchers will work collaboratively on three projects: · Development, piloting, and evaluation of community-based case-finding and support for individuals with cognitive impairment or dementia, delivered by Community Health and Wellbeing Workers (CHWWs); · CHARIOT PRO, a prospective longitudinal, biomarker and data – enriched study of cognitively healthy individuals, aiming to evaluate key biological mechanisms and identify risk in Alzheimer’s disease and related dementias (ADRD); and · eFINGER PRINT a population-based study for ADRD prevention, and includes piloting of innovative e-based assessments and interventions for self-led lifestyle change. DEM-COMM Research Fellows: 1. Dr Roxanna Korologou-Linden (Imperial) - Project TBC. 2. Dr Sujin Kang - (Imperial) Dr Roxanna Korologou-Linden (Imperial) Cognitive Health in Ageing Register: Investigational, Observational, and Trial Studies in Dementia Research (CHARIOT): Prospective Readiness cOhort Study(PRO). Dr Pallavi Nair - (Imperial) - identification and support of individuals with dementia and mild cognitive impairment in the community setting by community health and wellbeing workers (CHWWs). See ARC NWL site NIHR ARC North West Coast The NIHR ARC North West Coast projects are underpinned by a focus on health inequalities in dementia, building on the strength of our ARC and its ongoing dementia portfolio, including at the Liverpool Dementia & Ageing Research Forum, which will act as a key outlet for disseminating the research nationally and internationally. DEM-COMM Research Fellows: 1. Dr Sandra Ismail (Liverpool) - Religiosity and spirituality in risks of cognitive frailty and dementia 2. Dr Laura Prato - (Liverpool) - Dementia care navigators 3. Dr Megan Polden - (Liverpool) - Examining the impacts of singing support services for people living with dementia and their carers on well-being, quality of life, social isolation, and loneliness. 4. Dr Megan Readman - (Liverpool) - Parkinson’s disease dementia and link with hearing loss NIHR ARC Oxford and Thames Valley NIHR ARC Oxford and Thames Valley researchers are active in the development of applied health and social care research across all stages of the NHS Well Pathway for Dementia: prevention, diagnosis, treatment, community support, and palliative care. Areas include: Detailed phenotyping at pre-diagnosis and diagnosis (preventing well, diagnosing well) Mapping diagnostic trajectories and longer-term support needs (supporting well, living well, dying well) Reducing inequalities in dementia prevention and access to health and social care services (all NHS Well Pathway stages) DEM-COMM Research Fellows: 1. Dr Ting Cai - (Oxford) - Exploring preventive medications for dementia: big-data based pharmacoepidemiological research 2. Dr Padraig Dixon - (Oxford) - Understanding the cost-effectiveness of drug therapies (particularly repurposed drug therapies) to prevent and treat conditions. 3. Dr Jiamin Du - (Oxford) - Early diagnosis of dementia and real-world data. 4. Joseph Kwon - (Oxford) - Whole-disease economic modelling of dementia prevention and care 5. Dr Caroline Potter - (Oxford) - Exploring the availability and effectiveness of community-based support for enabling people to maintain health and wellbeing following initial diagnosis of dementia or its precursor (MCI). 6. Dr Subhashisa Swain - (Oxford) - Biological ageing in dementia and multimorbidity trajectories and clusters. NIHR ARC South London NIHR ARC South London is building research capacity in palliative and social care for people living with dementia through two interventions: Co-designing a validated tool with family carers, to support care, decision-making and access to services. The Integrated Person-centred Outcome Scale in dementia (IPOS-Dem) tool includes assessment of symptoms, emotional, spiritual and information needs and will be integrated with telehealth. Developing interventions to support care homes in better meeting residents’ spiritual needs, particularly those living with dementia from minority cultural or faith backgrounds. The research will be informed by perspectives of care home staff, residents living with dementia, and their family and friends to increase understanding of the beliefs and spiritual needs of residents living with dementia. Guidance and policies will be developed to help care home staff support spiritual care. DEM-COMM Research Fellows: 1. Dr Annabel Farnood - (KCL) - Empowering better end of life dementia care for family carers of people with dementia’ (EMBED-Care4FamilyCarers) 2. Dr Olivia Luijnenburg - (KCL) - Spirituality in residential care for people living with dementia: implementing reflective tools for care workers of people living with dementia. (SpiritDem for short) 3. Dr Lesley Williamson - (KCL) - Using routine data to understand and improve health and social care for people with dementia near the end of life NIHR ARC Wessex The NIHR ARC Wessex Ageing and Dementia theme focusses on independent living with and for older people with complex health and social care needs. DEM-COMM Research Fellows: Dr Nuno Tavares - (Portsmouth) - Exploring the self-management process of other long-term conditions in people living with Dementia Dr Catherine Murphy - (Southampton) - Dementia and continence management: Supporting homecare workers Dr Gladys Yinusa - (Bournemouth) - TOMATO: nuTritiOn and deMentia AT hOme - Watch Gladys explain - download TOMATO resources Dr Pippa Collins (Dorset Healthcare University NHS Foundation Trust) - An ethnographic exploration into the work of caring for paid homecare workers NIHR ARC West DEM-COMM Research Fellows: 1. Dr Katie Breheny - (Bristol) - To improve use of preference-based outcome measures in the economic evaluation of interventions for people with dementia 2. Dr Elisabeth (Lis) Grey - (Bristol) - Evaluation of a Parkinson's Treatment Hub and development of dementia interventions and evaluation tools to support people from diverse communities 3. Dr Natasha Woodstoke - (UWE) - Supporting families to adjust to a diagnosis of dementia: Adapting the LivDem intervention NIHR ARC West Midlands The ARC funding, provided by NIHR in collaboration with Alzheimer’s Society, is supporting a cohort of post-doctoral health and care researchers toward independence, developing their skills to establish their own research projects, programmes and ultimately groups. NIHR ARC West Midlands DEM-COMM Research Fellows are: 1. Dr Paul Campbell - (Keele) - Social Care Practice 2. Dr Sue Molesworth - (Keele) - Dementia’s place within the developing ICS/ICB landscape/multidisciplinary approaches 3. Dr Chris Poyner - (Birmingham) - People living with Dementia and informal carer/family experience within a social care context. NIHR ARC Yorkshire and Humber NIHR ARC Yorkshire and Humber is examining how potentially modifiable risk factors for dementia intersect with ethnicity and sociodemographic factors (University of Bradford), and a quantitative investigation of the policy impact of interventions to target dementia risk factors across ethnic groups and by deprivation using cohort study and routinely available, linked health and care datasets. in addition a Alzheimer’s Society postdoctoral research fellow is focusing on prevention of dementia, taking into account wider sociodemographic factors. DEM-COMM Research Fellows: 1. Dr Amirah Akhtar - (Bradford) - Promoting healthy lifestyles to reduce dementia risk factors in minority ethnic communities. 2. Dr Lin Gong – (Leeds) Dementia prevention and health inequalities among different ethnical groups. 3. Dr Emmanuel Nwofe (Bradford) Dementia prevention and health inequalities among different ethnical groups. NIHR ARC South West Peninsula ARC South West Peninsula have awarded fellowships to 4 early-career researchers, giving them the experience and training to help them to develop into future leaders in dementia research. DEM-COMM Research Fellows: 1. Dr Catherine Alexander - (Exeter) - IDEAL project 2. Dr Iliana Lourida - (Exeter) - TBC 3. Dr Tomasina Oh - (Plymouth) - TBC 4. Dr Hannah Wheat - (Plymouth) - D-PACT; ENLIVEN Projects Read more here

Research Fellow < Back Skaiste Linceviciute Research Fellow Long Term Conditions Skaiste Linceviciute is a Research Fellow at the ARC Wessex Mental Health Hub at the University of Southampton appointed to work on projects related to the Long-Term Conditions and Ageing and Dementia themes. Skaiste brings expertise as a qualitative researcher in areas on uncovering the challenges and unmet needs of people living with long-term physical and mental conditions as well as pursuing research on person-centered support systems. Skaiste is also the Mental Health Hub's Researcher Representative for the ARC Public Involvement Forum Wessex, working together with other contributors ensuring research meaningfully addresses community priorities and is guided by people with lived experience. Previous Next

Glossary of Terms Accessibility Accessibility is about making sure that things can be accessed and used by as many people as possible. This includes people with impaired vision, motor difficulties, cognitive impairments, learning disabilities and deafness or impaired hearing. APIF The ARC Public Involvement Forum - this is our strategic PPIEP group. It is composed of Theme Public Advisors, the PPIEP team and staff links for each research theme. ARC funded or ARC supported studies Our research may be directly financed by our ARC ('ARC funded') or we may provide support, such as by providing staff resource ('ARC supported'). ARC or Applied Research Collaboration ARCs support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. They are funded by the NIHR. There are 15 funded across England. ARC Partnership Board This is a decision-making body for ARC Wessex. It meets quarterly to set priorities and directly contribute to, support delivery and monitor performance of our programme. The board membership has two public representatives. BRC or Biomedical Research Centre BRCs bring together academics and clinicians to translate lab-based scientific breakthroughs into potential new treatments, diagnostics and medical technologies. There are 20 NIHR funded BRCs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton BRC. Our researchers also work closely with staff in the BRC. CCF or Clinical Commissioning Facility They manage and administer the ARC funding scheme. We report to them annually and will have to report our progress against this strategy. CLAHRC or Collaborations for Leadership in Applied Health Research and Care This is the term for the organisations which preceded the ARCs. They were also funded by the NIHR and had a similar function. This funding scheme closed in Sept 2019 when the ARC scheme succeeded them. Communications and Partnership Manager This role has responsibility for shaping and delivering our communications, and supporting productive relationships across our partners. This post is currently filled by Jamie Stevenson. CRF or Clinical Research Facility CRFs are purpose built facilities in NHS hospitals where researchers can deliver early-phase and complex studies. There are 22 NIHR funded CRFs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton CRF. Engagement Where information and knowledge is provided and shared with the public. Equality impact assessments The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. They help ensure that activities do not discriminate against anyone and that, where possible, we promote equality of opportunity. Executive Leadership Group This group operationalises strategy, policy and the research programme. The group is led by the ARC Director; the Strategic Lead for PPI/E and Communications and the Partnership Manager are members. Fellowship Fellowships are a type of research funding which are awarded to individuals. For example, a fellowship may enable a person to complete the next stage of their academic career training. Higher Education Institutes This term describes any institution that provides education post-secondary education level, for example Universities. INCLUDE This guidance provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals to improve inclusion of under-served groups in clinical research. Read more . INVOLVE INVOLVE was a national coordinating centre for public involvement in health and care. It was funded by the National Institute for Health Research between 1996-2020. A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE. Lifelab A unique, state-of-the-art teaching laboratory dedicated to improving adolescent health by giving school students opportunities to learn first-hand the science behind the health messages. Logic modelling and theory of change A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. Our Strategic Lead for PPI/E supervises a PhD student who has developed a PPI/E planning and impact tool, underpinned by the theory of change and a logic model. We aim to use this to capture impacts of the ARC PPI/E programme. Manager for PPI/E This role has responsibility for shaping and delivering our PPI/E strategy. They also lead PPI/E for other NIHR organisations. The post is currently filled by Annemarie Henkinson. Microsoft Accessibility Checker A free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. Read more . NHS providers This term describes any organisation that provides NHS services. This includes hospitals, community trusts, GP services, pharmacies and clinical commissioning groups. NIHR or National Institute for Health and Care Research The National Institute for Health Research is funded by the Department of Health and Social Care. It funds health and care research, providing the people, facilities and technology for research to thrive. Patient and public involvement Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Members of the public can be involved at all stages of a research project and across all levels of research organisations. PhD award A PhD award is a research award which supports an individual to study for their doctorate. PPI Champions Our PPI Champions are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPI/E team. We try to have two PPI Champions per research theme. PPI Officer Our PPI Officer is a member of staff dedicated to supporting good PPI/EP. PPI/EP An acronym for patient and public involvement engagement and participation. Used to describe work and projects which connect or encompass both activities. Population risk stratification and intervention to prevent childhood obesity This project aims to test the feasibility and acceptability of a childhood obesity prediction tool and online platform for health visitors to use when supporting families to lead healthier life styles. The involvement work will focus on working with the underserved, such as those from deprived or ethnic minority groups, who are most at risk of childhood obesity. Principal Investigator In studies or trials, this term is often used to describe the person who holds the research grant. They are the lead researcher for the project, Public Engagement in Research Unit This unit exists to inspire and support high quality public engagement with research across all disciplines at the University of Southampton. Public Policy Unit This unit, at the University of Southampton, helps researchers connect with policymakers to better support evidence-based policymaking. Socio economic status This term describes an individual's or family's economic and social position. It is a predictor of outcomes across the life span. Staff links Each theme has a nominated PPI/E staff link. This is a member of their research team. They are members of our strategic PPI/E group, APIF. Sure Start Sure Start is a government area-based initiative that was founded with the aim of 'giving children the best possible start in life' through improvement of childcare, early education, health and family support. Theme Public Advisors OurTheme Public Advisors are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPIEP team. We try to have twoTheme Public Advisors per research theme. PPIOfficer Our PPIOfficer is a member of staff dedicated to supporting good PPIEP. Training Needs Analysis This is a process to determine all the training that needs to be completed (and when) to allow someone to complete their job as effectively as possible, as well as progress and grow. UK Standards for Public Involvement The standards are a framework for what good public involvement in research looks like. They provide clear, concise statements of effective public involvement against which improvement can be assessed. They were developed as a partnership of organisations across the UK, including the NIHR. Underserved Underserved is the term we have chosen to use to describe people who are less well included in research. We prefer this term because it highlights that the research community needs to provide a better service for these individuals. Wessex Wessex is the region covering Dorset, Hampshire, the Isle of Wight and South Wiltshire.

e468f3be-ad28-42e2-8ec5-7270d68258c8 ADOPTED: Treatment burden in people below the age of 65 with multimorbidity in primary care: A mixed methods (SPELL) Principal Investigator: Dr Rachel Johnson, University of Bristol Team: Prof Chris Salisbury, University of Bristol Prof Jose Valderas, University of Exteter Dr Simon Fraser, Univeristy of Southampton Dr Maria Panagioti, University of Manchester Dr Tom Blakeman, Univeristy of Manchester Dr Shoba Dawson, University of Bristol Dr Polly Duncan, University of Bristol Dr Michael Lawton, University of Bristol Start Date: 1 February 2022 End Date: 31 July 2024 Background One in two people over the age of 50 have more than one long term health condition (multimorbidity). The number of people living with multimorbidity is growing. Compared with people without multimorbidity, people with multimorbidity have worse quality of life, take more medicines, and are more likely to die or to be admitted to hospital. More people in deprived areas develop multimorbidity at a younger age. As a group, people with multimorbidity have more contacts with healthcare services than people with one or no long-term conditions. Because of this the NHS and policy-makers want to find ways to manage multimorbidity better. People with multimorbidity put a lot of effort to manage their medicines and healthcare appointments (treatment burden). There is some research that younger people experience more treatment burden. Previous research tells us that sometimes it is the simple things like getting appointments with the GP and finding parking that cause the most burden. Although people with multimorbidity are often grouped together, their experience depends on the health conditions they have, their ethnicity, where they live and their level of income. People with multimorbidity who are working age might have different problems such as getting time off work for appointments, managing their health conditions as work, or juggling childcare. This study will focus on people who are under the age of 65, as not much research has focused on them. A recent report by a charity for people with multimorbidity said that not much research has been done on how it feels for people to live with multimorbidity. Also, we do not know the best way to support and treat people with multimorbidity in GP services. If we understand people’s experiences, we might be able to design better services to meet their needs. There are some questionnaires that could be used to find people who be finding it difficult to cope with their multimorbidity burden, but they need more testing in the UK, particularly in younger people. Some questionnaires are too long, and it would be helpful to have a short version (e.g. just one question). This could be used regularly, as a quick way to identify people who might be ‘overburdened’ and need more support. We want to find out how health care services can support people with multimorbidity and reduce their treatment burden. We will do this in three ways: 1) interviewing people with multimorbidity, 2) ask people to complete questionnaires and 3) hold a meeting with people with multimorbidity, GPs and people who organise GP services, to talk about what we have found and work together to make recommendations to improve care. Throughout the study, we will work with the staff and patients at the GP surgeries involved to increase the number of people who take part. We will make efforts to reach and include people from minority ethnic groups and those who have difficulties in accessing health care. We will work with local community groups to raise awareness about this study and translate study materials into different languages. People with multimorbidity who take part in each part of the study will receive a voucher to thank them for taking part. In the first part of the study, we will ask GPs to find people with multimorbidity at their practice. We will invite some of those people to be interviewed, for up to 1 hour, either by phone, video or face to face. During the interview we will find out about their experience of living with multimorbidity, efforts they have to put into managing their health and treatment burden, and ways in which using health care services help or make it more difficult. We will use what we find in this study to help design the questionnaire that we will use in the second part of the study. In the second part of the study, we will ask GPs to invite randomly selected people from their practice. People who agree to take part will fill in questionnaires and give us permission to look at their medical notes. The questionnaires will ask about their experiences of care, how multimorbidity affects them, including the burden because of their health conditions or from managing them. As part of this we will test how well a short measure, based on a very small number of questions or even a single question, works in identifying overburdened people. In the third part of the study, we will hold a meeting with patients, people who organise healthcare services, and commissioners and healthcare professionals. During this meeting we will make sense of the results from interviews and questionnaires to identify how health services can support people with multimorbidity We will work together with people with multimorbidity or those with experience of caring for people with multimorbidity. The idea for this study came from a PPI group focused on multimorbidity research projects, with which both RJ and SC have been involved in for the past two years. We have set up a patient and public involvement (PPI) group including six people (two from minority ethnic groups). This group will be involved throughout the study from developing study materials to developing materials for sharing study findings.

00ac00f7-6a45-413d-9354-92f1eb973632 Testing the effects of food product placement on customers’ visual attention and intended product purchases: a randomised trial in a virtual supermarket setting (Phase II) Principal Investigators: Janis Baird and Christina Vogel, Professor of Public Health and Epidemiology and Principal Research Fellow in Public Health Nutrition respectively, MRC Lifecourse Epidemiology Centre, University of Southampton Team: Dr Sarah Muir, Senior Research Fellow, University of Southampton Dr Sarah Crozier, Senior Statistician, MRC Lifecourse Epidemiology Centre, University of Southampton Dr Hayward Godwin, Associate Professor of Psychology, University of Southampton Professor Marcus Munafo and Dr Olivia Maynard, Bristol University Ravita Taheem, Southampton City Council, Sure Start Children’s Centres Started: 1st March 2022 Ends: 30th September 2024 Background Poor diet is linked to an increased risk of obesity, diabetes and heart disease. Most adults in England consume too much salt, saturated fat and free sugar, and do not eat the recommended five daily portions of fruit and vegetables. People with lower education and income levels are more likely to have poor diet and to experience health problems as a result. Women of childbearing age are primarily responsible for domestic food tasks such as shopping and cooking, and their diets are closely linked to those of their children. Most families buy their food from supermarkets and their food choices can be influenced by placement of items in-store and by promotions. Our research This project follows on from COMPLETED: Testing the effects of food product placement on customers’ visual attention and intended product purchases: a randomised trial in a virtual supermarket setting (Phase I) We want to find out how the placement and packaging of healthy and unhealthy foods influence the foods that women choose to buy. We will do this by creating a ‘virtual’ supermarket layout that participants will interact with on a computer screen. We will recruit women attending Sure Start Children’s Centres in Hampshire and those whose children attend early years settings. Hampshire is a county within the Wessex region with some relatively deprived areas. We will choose centres and early years settings located in areas of higher deprivation. Local data suggests that 70% of families with young children are engaged with the centres. Women using the virtual supermarket will be shown images of healthy and unhealthy foods and non-food items that are placed in noticeable locations in the supermarket like checkouts. We will measure the specific aspects of the images women look at using experimental techniques such as eye tracking, which records their gaze point and gaze duration. The eye tracker is positioned close to the computer screen allowing it to record where women look. We will then ask women to tell us the products that they saw for sale, the name of the products they considered purchasing, and aspects of the supermarket that took their interest, and why. Our findings will tell us how people respond to the placement and packaging of different types of food products and whether these reponses differ if families are poorer or more wealthy. These findings help us to design ways to layout supermarkets to help all families eat more healthy foods. Our research will begin in March 2022 and end in late 2022. We will share the findings from our study with local families attending Sure Start Children’s Centres and early years settings. We will inform local and national government employees about our findings which could help to refine current government policies to address childhood obesity. The Study • 68 mothers took part in an eye-tracking study at the University of Southampton. •The women viewed scenes from a virtual supermarket which showed healthy, unhealthy and non-food products. •Scenes focused on the areas in a store where most shoppers usually pass through including the store entrance, end-of-aisles and checkouts. •Eye tracking software captured their eye movements to measure their attention. Participants were also asked to click on items on the screen that they wanted to purchase. •Twelve women also took part in interviews. mothers took part in an eye-tracking study at the University of Southampton. What did we learn? •We compared women’s attention to healthy, unhealthy and non-food items by showing them images of products side by side. Women showed higher levels of attention to healthy products over unhealthy and non-food items. Healthy products were viewed for 0.10 more seconds than unhealthy products and 0.15 more seconds than non-food items. The eye-tracking study also showed that the women had higher intention to purchase healthy foods over unhealthy and non-food items. Interviews with the women showed they used strategies like shopping lists and avoiding aisle ends to avoid unhealthy purchases. They wanted more healthy snacks or products they might have forgotten (such as paracetamol or batteries) at checkouts. What difference can this new Knowledge make? Supermarkets usually place unhealthy foods in noticeable places to make profits. Replacing these unhealthy foods with healthy or non-food items will just as likely, if not more successfully, lead to purchases. This can help families lead healthier lives. Why is this important for patients, health and care providers and policy makers? Placing unhealthy foods in noticeable locations can lead to impulse purchases of foods that can lead to obesity. Our study shows that women do not intend to buy these foods and would prefer healthier alternatives. Since 2022, UK policy has banned the placement of some unhealthy foods at noticeable locations in supermarkets. This research provides evidence that customers are likely to support this policy as they would like to buy healthy and non-food items from these locations. What Next? We are creating an infographic to share our findings with families via Sure Start Children’s Centres, Facebook and local schools. These results support our ongoing evaluation of the Food (Promotion and Placement) Regulations. Data will be shared in ongoing conversations with local authorities and via an academic publication. We have received funding to expand our study from mothers to young people. Adolescence is a time when young people may start to make independent food purchases. We aim to further understand what environmental factors influence young people’s purchases on their journey to and from school.

f5788d42-1d65-4ac1-a9d5-00a8fcb316fd Improving support for self-management (WASP) Using the Wessex Activation and Self-Management and Personalisation (WASP) Tool to design and implement system wide improvements in self-management support for people with long-term conditions See the WASP website https://www.wasp.soton.ac.uk/ Principal Investigator: Professor Mari-Carmen Portillo Team members: Professor Mari-Carmen Portillo (Professor of Long-Term Conditions, School of Health Sciences, University of Southampton), Dr Hayden Kirk (Consultant Physiotherapist & Clinical Director Adults Southampton, Solent NHS Trust), Dr Chris Allen (Lecturer, School of Health Sciences, University of Southampton), Stephanie Heath (WASP Clinical Lead, Royal Bournemouth & Christchurch Hospitals NHS Foundation Trust), Dr David Culliford (Senior Medical Statistician, School of Health Sciences, University of Southampton), Dr Louise Johnson (WASP Project Manager, Royal Bournemouth & Christchurch Hospitals NHS Foundation Trust), Dr David Kryl (Director, Centre for Implementation Science, University of Southampton), Professor Alison Richardson (Professor of Cancer Nursing and End of Life Care, University of Southampton) Start: 1 October 2019 Ends: 30 September 2024 Project Partners: Solent NHS Trust, Royal Bournemouth & Christchurch Hospitals NHS Foundation Trust, University Hospital Southampton NHS Foundation Trust, Hampshire and Isle of Wight ICS Summary Good health and health care are key to a flourishing society. Focussing on what matters most to patients is essential for accessible, equitable and efficient care. In an NHS that is facing many challenges - including an increasing prevalence of multimorbidity and high levels of workforce burnout - this is easier said than done. The Wessex Academy for Skills in Personalised Care (WASP) has developed a programme to facilitate adoption of personalised care in practice. Led by the University of Southampton in partnership with NHS organisations across the Southeast, this programme supports health and social care services to embed personalised care practices – through rigorous evaluation, training, and bespoke improvement initiatives. Research is underway to evaluate the impact of the programme, and to understand how it could be spread and scaled. If adopted nationally, this programme has potential to be the catalyst for changing how we deliver and sustain services across the NHS. Impact People with multiple long-term conditions (MLTC) represent a significant proportion of the primary care population; with an estimated 14 million in England living with two or more chronic conditions. Many experience high treatment burden, fragmented care and reduced quality of life. While national policy promotes personalised care, implementation at scale has proved challenging. Services often lack the tools, skills and system support needed to embed personalised approaches into everyday practice. Difficulties in defining and measuring personalised care, add further challenge. The Wessex Academy for Skills in Personalised Care (WASP) was established to address this gap. Funded and commissioned by Hampshire and Isle of Wight and Dorset Integrated Care Boards (>£710K), WASP has developed an evaluation and training approach, focused on cultural and system-level change rather than isolated interventions. Led by the University of Southampton and working in close partnership with NHS organisations, WASP supports health and social care services to embed personalised care in a sustainable way. Training is accredited by the Personalised Care Institute and WASP is a partner with the Coalition for Personalised Care. Being hosted within NIHR ARC Wessex has enabled WASP to bring together research expertise, service improvement skills and frontline clinical experience. This collaboration underpins a structured programme built around three core elements: evaluating current practice, building skills through accredited training, and supporting services to make sustained improvements. A co-produced service evaluation tool enables teams to reflect on how personalised care is experienced by staff, service users and the wider system; enabling understanding of not just what happens in practice, but why. Training builds staff confidence and capability, while improvement support helps translate learning into measurable change. This work has had broad impact. To date, 45 clinical services across Hampshire, the Isle of Wight, Dorset and Sussex have completed the WASP programme. Over 1,400 healthcare staff have taken part in training, and more than 2,000 people, including clinicians, managers, commissioners and service users, have engaged with the service evaluation. Teams report shifts in mindset, with greater focus on “what matters” to individuals and increased confidence in delivering flexible, responsive care. People using services benefit from care that better reflects their priorities and circumstances, while staff gain shared language, clearer frameworks and practical tools. Commissioners and system leaders benefit from robust evidence to guide investment and improvement. WASP has also influenced practice beyond participating services, contributing to NHS England South East guidance; providing regional leadership on Patient Activation Measure use for NHS England; and contributing to ICB values-based care steering boards. NIHR ARC Wessex has been critical in enabling this impact by supporting programme development, evaluation and dissemination. ARC infrastructure has provided methodological and statistical expertise, mentorship, impact capture guidance and communications support, enhancing credibility and enabling scale-up. Through ARC Wessex, WASP accessed expertise across the University of Southampton, including business intelligence and the Business School, securing two development grants in 2023: the Southampton Enterprise Development Fund (£8,550) and Higher Education Innovation Fund (£10,000). Engagement has also taken place through WASP conferences in 2023 and 2024, with over 100 delegates including clinicians, commissioners and national policy stakeholders. The team is now collaborating with colleagues from UCL, Bristol, Leeds and Exeter to develop a programme grant focused on a scalable and sustainable personalised care intervention. This partnership demonstrates how NIHR investment can translate evidence into meaningful improvements for people living with long-term conditions. “It was good that we were able to focus on how shared decision making can work for continuing healthcare joint working on assessing challenges and positives- in a structured way. The idea of the need was there, and it helped to provide the framework to address the need ” [Programme Participant] https://www.wasp.soton.ac.uk/ We have now held 3 regional conferences, with attendance from 100+ delegates and a range of regional and national speakers – photos can be found on the conference page of our website. https://www.linkedin.com/company/wessex-academy-for-skills-in-personalised-care A scoping review followed this project to provide the rationale for the WASP assessment tool of personalised care practices – this has now been published: Johnson et al (2025) Next? WASP II is now evaluating and collecting evidence of the impact of the Wessex Academy for Personalised Care programme. We are conducting a secondary data analysis on existing WASP survey data, to better understand the behavioral factors impacting personalised care practices. We are seeking for further NHS teams to complete the training beyond Wessex. We are planning an NIHR PGfAR Submission in April 2026 – focussing on sustainable and scalable development and national evaluation of the programme. We are collaborating with UCL, Bristol, Leeds and Exeter, as well as the Personalised Care Institute. Now there's a series of FREE webinars to develop skills supporting personalised care, for health and care professionals in the Isle of Wight, Hampshire. More here

1ab7e5e6-86e2-4f8e-a9c6-1bc46e56207d ADOPTED: Personalised social and self-management support for better living with multiple long-term conditions in the community (CO-ACTION) Chief Investigators : Dr Dorit Kunkell, School of Health Sciences, University of Southampton and Professor Mari Carmen Portillo, School of Health Sciences, University of Southampton. Team: Dr Hannah Wheat, Professor Victoria Allgar and Professor Richard Byng from the University of Plymouth. Miss Francesca White, Hampshire and Isle of Wight Integrated Care Board (ICB). Dr Tom Blakeman and Professor Peter Bower from the University of Manchester. Professor Daniel Prieto-Alhambra, Associate Professor Rafael Pinedo-Villanueva, Dr Annika Jödicke and Miss Maria T Sanchez-Santos from the University of Oxford. Dr Lindsey Cherry and Dr Kate Lippiett from the University of Southampton. Mr Eric Compton, Patient and Public Contributor, Southampton. Start: 1 June 2024 End: 30 November 2028 The CO-ACTION programme aims to improve wellbeing for people with multiple health problems. Living with Multiple Long-Term Conditions often called ‘Multimorbidity’ (MLTC-M) involves multiple appointments and care plans. Patient priorities are often overlooked. Common issues include pain, mobility problems and fewer interactions with friends and family. This can lead to loneliness and poorer mental health. The research team will work with fellow researchers, health, social care and VCSE sector workers to co-design and test a health and wellbeing intervention with and for people living with MLTC-M . To evaluate the CO-ACTION intervention: We will run a trial involving 500 people living with MLTC-M and carers. Half will receive the intervention. The other half will continue with usual care. We will recruit participants (with Patient and Public Involvement support) in health and community settings in Manchester, Leeds, Plymouth, and Southampton. Wellbeing, quality of life, unplanned hospital admissions, and costs will be assessed at the beginning, 6 and 12 months later. Researchers will test how this intervention can be adopted in the NHS in six case study sites. Public and patient (PPIE) contributors will help us design materials, consider challenges and provide feedback on findings.

a3233a2e-82c9-4634-a984-44c5ddb93cad ADOPTED PROJECT: MELD Developing a Multidisciplinary Ecosystem to study Lifecourse Determinants of Complex Mid-life Multimorbidity using Artificial Intelligence (MELD) Chief Investigator: Dr Simon Fraser – University of Southampton Project Team Members: Dr Nisreen Alwan – Associate Professor in Public Health, School of Primary Care, Population Sciences and Medical Education, University of Southampton, Professor Michael Boniface – Director of the University of Southampton IT Innovation Centre and Web Science Institute, Professor Ben MacArthur – Mathematical Sciences University of Southampton, Professor Rebecca Hoyle – Mathematical Sciences University of Southampton, Dr Sarah Crozier – Associate Professor of Statistical Epidemiology, MRC Lifecourse Epidemiology Unit, Faculty of Medicine, University of Southampton, Mr William Ware – Patient and Public Involvement Contributor, Mr James McMahon – Patient and Public Involvement Contributor, Dr Emilia Holland – Public Health Specialty Registrar, School of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University of Southampton, Dr Zlatko Zlatev – Senior Enterprise Fellow, Electronics & Computer Science, University of Southampton Background: As with many countries we are facing challenges related to the growing number of people living with multiple long-term health conditions like diabetes, heart disease or dementia. All the way through peoples’ lives many things influence the chances of developing such conditions. This includes some things that are hard to research - broader issues throughout life such as the environment people grew up in, their education, work, and so on. Sadly, people from more socially and economically disadvantaged backgrounds are more likely to develop multiple conditions at an earlier age. There is also evidence that the order of developing conditions varies considerably and influences what then happens to people. This makes understanding these broader issues and how they affect that order vital to inform when and how we should intervene to prevent conditions developing. To achieve this, we need to study large numbers of people over their whole lifetime, but such datasets do not exist. Very large health datasets collected from NHS GPs are helpful but haven’t been running long enough to track from birth to later life. They include lots of information on long term conditions but not much about broader issues. In our Development Award (called ‘MELD’) we had access to one such dataset of about 700,000 people, which we used to identify health conditions. We also accessed data from the ‘1970 British Cohort Study’ – a long-running research study called a ‘birth cohort’ Publication: Early-onset burdensome multimorbidity: an exploratory analysis of sentinel conditions, condition accrual sequence and duration of three long-term conditions using the 1970 British Cohort Study https://bmjopen.bmj.com/content/12/10/e059587.full